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Sky’s the Limit Honorees Announced
LuMind Research Down Syndrome Foundation is happy to announce the honorees for the Second Annual Sky’s the Limit Awards Gala. Sky’s the Limit recognizes the best and brightest who have helped propel Down syndrome cognition research, celebrating their successes at a Gala on May 21, 2016 in Seattle, Washington. Founders’ Award: Awarded to an individual or organization whose […]
Tuesday, February 16, 2016 5:46:17 PM

World’s First Clinical Trial for anti-Abeta Vaccine Targeting Alzheimer’s Disease-like Characteristics in People with Down Syndrome
PRESS RELEASE – Issued by AC Immune Studies AC Immune’s ACI-24, the first anti-amyloid vaccine for treatment of Alzheimer’s disease-like characteristics in people with Down syndrome Clinical Study is done in collaboration with University of California San Diego US NIH provides significant funding with an additional grant from the LuMind Research Down Syndrome Foundation Alzheimer’s […]
Thursday, January 07, 2016 11:02:57 AM

Federal Budget Updates Related to Down Syndrome Research
Our Dr. Harpold stays closely connected to and works in the world of research, not only Down syndrome and Alzheimer’s disease, but also relevant research endeavors at a broad scale. Here’s his take on the Federal 2016 Omnibus Budget Bill. By Dr. Michael Harpold, LuMind RDS Chief Scientific Officer The just enacted Federal 2016 Omnibus Budget […]
Thursday, December 24, 2015 9:56:18 AM

Clinton Campaign Announces Investment Plan for Alzheimer’s Disease
LuMind Research Down Syndrome Foundation applauds the development and announcement by the Clinton presidential campaign of a formal plan for new investment to prevent, treat, and make an Alzheimer’s disease cure possible by 2025, which includes a commitment to reach the $2 billion annual funding level for NIH’s dementia research. You can read more details on Clinton’s announced plan […]
Wednesday, December 23, 2015 11:28:01 AM

Run – Don’t Walk! Sign up for the 2016 United Airlines NYC Half on March 20th!
Interested in running the United Airlines NYC Half on March 20th, 2016, but didn’t get accepted through the lottery?  Don’t worry – we have bibs!  Guarantee your spot in the 2016 United Airlines NYC Half today by signing up to run with us today. In order to commit to one of the ten charity spots […]
Thursday, December 10, 2015 4:00:39 PM

Awaken A Force
By Alan Gard, Devoted Dad (and Jedi Knight Battling Darth Dementia) As December greets us this year, many are in a festive move as a special event approaches…namely the release of Star Wars: The Force Awakens. Over $50 million in presale tickets have already been sold. When was the last time you bought a ticket in […]
Monday, November 30, 2015 10:57:04 AM

Never Underestimate Your Influence
by Anne Tippett, LuMind RDS Vice President of Development Do you have plans for December 1, Giving Tuesday? Giving Tuesday is a national day of giving that follows Black Friday and Cyber Monday. You may already have a charity in mind to support, hopefully you’ll consider LuMind RDS. Did you know your friends and family […]
Monday, November 23, 2015 4:00:43 PM

NIH supports new studies to find Alzheimer’s biomarkers in Down syndrome
The National Institutes of Health announced a groundbreaking initiative to track dementia onset and the progress of Alzheimer’s disease in people with Down syndrome. The studies will be funded by the National Institute on Aging (NIA) and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), both part of NIH. “We […]
Thursday, November 19, 2015 11:21:55 AM

LuMind Research Down Syndrome Named an Official Charity Partner of the 2016 United Airlines NYC Half Set for Sunday, March 20, 2016
New York, November 17, 2015 — LuMind Research Down Syndrome Foundation was named an Official Charity Partner of the 2016 United Airlines NYC Half, it was announced today by Carolyn Cronin president and CEO of LuMind RDS. The race will take place on Sunday, March 20, 2016. “The opportunity to partner with the United Airlines […]
Tuesday, November 17, 2015 5:02:12 PM

DS-Connect®: Step-By-Step
By Veronica Fratta Launched in 2013, DS-Connect® is an online health registry for individuals with Down syndrome. The registry supports Down syndrome research by collecting data on medical conditions affecting people with Down syndrome and making that de-identified information available to scientists and the medical community. The registry also connects people with Down syndrome with […]
Monday, November 16, 2015 9:58:50 AM

By Alan Gard The year 1989 has gotten some attention of late. This is primarily due to it being the birth year of Taylor Swift, she of recent world domination.  She even paid homage to that year as the title to her most recent album, which also was the final step into her total transformation […]
Tuesday, November 10, 2015 10:35:51 AM

Might Normalizing Brain Development Help in Down’s Syndrome?
LuMind Research Down Syndrome Foundation’s Chief Scientific Officer Dr. Michael Harpold was referenced in a discussion from the Society for Neuroscience Annual Meeting. The article discusses if the cognitive impairments associated with Down syndrome could be prevented. Dr. Harpold was mentioned along with others from Tufts Medical in Boston, Univeristy of Bologna in Italy and Institute for Basic […]
Thursday, November 05, 2015 12:59:47 PM

LuMind RDS Welcomes Three New Board Members
At our October 28, 2015 Board meeting, the LuMind RDS Board voted in three new members. Please join us in welcoming Virginia Bennett Flynn, Patrick Kannon, and Christopher Lis. Virginia Bennett Flynn joins us from Massachusetts, but brings an international perspective to her Board role thanks to her extensive resume of working abroad and with global firms. […]
Friday, October 30, 2015 3:39:23 PM

Danke Schon and Tschüss to Dr. Bob
Dr. Robert Schoen, former president of Research Down Syndrome and LuMind Research Down Syndrome director of event and donor engagement, has retired from the organization. We are so grateful for Bob’s help and advice during the merger transition and join the thousands of RDS supporters – especially the vibrant community of Runners – in thanking Bob […]
Monday, October 26, 2015 11:08:00 AM

LuMind RDS Runners Leyda and Chad Simon Profiled
Chad Simon is a student at Fort Hays State University – and a long-time runner for the LuMind RDS Runners program. Chad runs along along with his wife Leyda in support of their daughter Ashylnn who has Ds. Chad and Leyda were profiled in an article in the Fort Hays State University news outlining their […]
Friday, October 23, 2015 10:12:43 AM

Cognition Goes Global – LuMind RDS Joins Down Syndrome International
LuMind Research Down Syndrome Foundation is proud to announce we’ve joined Down Syndrome International (DSi) as an affiliate member. DSi is a global network of Down syndrome organizations representing 131 countries around the world. They’re aiming to channel the expertise and experience existing in many countries and use that knowledge to benefit other countries, especially […]
Wednesday, October 21, 2015 3:49:10 PM

Celebrating 10 Years of ROMP
Thank you to everyone who played, smiled, laughed and donated in celebration of 10 years of the ROMP on October 11 in NYC. We’ll be adding more pictures as we receive them and can’t wait to see the video of the event! (It’s here! Thank you Keith Brady!) Romp For Research 2015 from Keith Brady Media on […]
Friday, October 16, 2015 12:11:00 PM

Warmth and Enthusiasm at the Alexander’s Angels Buddy Walk
We were so happy to represent cognition research at the 9th Annual Alexander’s Angels Buddy Walk on October 10, 2015 on Long Island. The sun was shining, kids were laughing, and a good time was had by all in celebration of Down syndrome Awareness Month. Our VP of Development, Anne Tippett, was on hand to […]
Tuesday, October 13, 2015 1:03:00 PM

Kate Dochelli Runs to LuMind RDS
We are happy to announce that Kate Dochelli has joined LuMind RDS to lead and grow the vibrant Runners program as well as coordinate special events for the organization. Kate has been a member of the RDS Runners program for several years and is poised to engage with runners since she is marathoner herself. “I […]
Wednesday, September 23, 2015 5:14:43 PM

Comments on Reports of a “New Down Syndrome Therapy”
By Dr. Michael Harpold Chief Scientific Officer, LuMind RDS Foundation Many of you have asked about a recent news piece and associated press release entitled “New Down syndrome Therapy Discovered.” Although this is not a research endeavor LuMind RDS is funding, the following perspective is provided which may be helpful in addressing some questions and further understanding […]
Monday, September 14, 2015 11:04:42 AM

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