Join our celebration of wdsd

We're celebrating World Down Syndrome Day in such a big way, we need the whole month!

Join us in "actively" support cognition research by joining our WDSD Virtual Run/Walk. Make your own goal or gather your friends and run 3 miles 21 times or 21 miles 3 times, walk 3.21 miles, steps, kilometers, or jog along Route 321... Anyway to show your support for WDSD!

Learn more about joining our vibrant running community and the WDSD Virtual Run/Walk.



First Ever Public Private Partnership Allows LuMind RDS to Leverage Grant Funds in Clinical Studies for People with Down Syndrome

LuMind Research Down Syndrome announces a Translational Innovation Research Grant award to AC Immune for the Phase Ib ACI-24 clinical trial targeting the earlier-onset Alzheimer’s disease in individuals with Down syndrome. This first-ever private-public partnership, with funding by AC Immune, the National Institutes of Health, and LuMind Research Down Syndrome Foundation has been a two year effort LuMind RDS Chief Scientific Officer Dr. Michael Harpold and the other involved parties. Dr. Michael Rafii of the University of California, San Diego, will direct the clinical studies and associated trial sites for the study of a novel, potentially disease-modifying drug candidate targeting the earlier-onset Alzheimer’s disease in individuals with Down syndrome.

This is an important, exciting, and groundbreaking new step towards addressing a major health concern for all individuals with Down syndrome. Thank you for your donations, which allowed LuMind RDS to support this exciting clinical study project, which gives our grant six times more leverage via this unique funding partnership.

Please learn more about this exciting project in a press release issued by AC Immune.  


Can you ROMP?

Have you seen the video from the 2015 ROMP for Research? Just a warning, be ready to smile, laugh and have some fun! Thank you to Keith Brady Media Inc. (contact Keith via email).  We're still accepting donations if you are inspired to support 10 years of the ROMP.

Romp For Research 2015 from Keith Brady Media on Vimeo.

Thank you for Giving Tuesday - December 1, 2015

Giving Tuesday was December 1, 2015 and we thank you all for your support and donations. We raised more than $22,000 that will go directly to Down syndrome cognition research. To learn more about Giving Tuesday, including making a donation (we'll accept it!) and learning about our many volunteer opportunities, visit our Giving Tuesday page.

The 2015-2016 Research Grants are Here!

Where are the brightest lines of Down syndrome cognition research discovery? Learn how your donation dollars are funding groundbreaking research in Down syndrome and early onset Alzheimer's disease in people with Down syndrome. Read all about the grants here.

Research Update: What's New in Cognition Research at Johns Hopkins?

Did you miss the webinar - or perhaps you just want to hear it again! Check out our webinar page to access the recording for the research update from Dr. Roger Reeves and Dr. Paul Worley from Johns Hopkins University who explained the progress on the three projects they are working on related to improving Down syndrome cognition. And if you missed the webinar announcing the 2015-2016 grants, you can listen to a download of the webinar here.

Dr. Michael Harpold talks Down Syndrome Research on Arizona PBS

Dr. Michael Harpold, LuMind RDS's chief scientific officer, appeared on Horizonte, a news and affairs program on Channel 8, a public television station in Arizona to talk about Down syndrome research. Enjoy the update from Dr. Harpold at 17 minutes.

Here's to Collaboration!

Thank you to Jeremie Ballinger, Executive Director of the Down Syndrome Association of Greater St. Louis, who took some time from the activities at DSAIA to talk about the merger of LuMind Foundation and Research Down Syndrome. We appreciate the time Jeremie took to "welcome collaboration," especially as the DSAGSL was busy collecting numerous awards at the conference. We're so glad to have your support, DSAGSL!

LuMind Foundation and Research Down Syndrome Have Merged to Create One Organization: LuMind Research Down Syndrome Foundation

LogoThe LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries. Read more in our press release. 

Karen Gaffney on the Importance of Research

Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.

We Have Big Plans for 2015!

Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.

NIHNIH Releases 2014 Down Syndrome Research Plan

We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.

The ROMP Video is Here!

What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.




About Our Name


We're lighting up the future with a new name, new friends, and exciting progress.

Read More About Our New Name


Read Our Press Release


Upcoming Events

January 30, 2016, 7:00 PM - Glitter and Glue: A Night with New York Times Best Selling Author Kelly Corrigan, Saint Charles, Illinois

Kelly Corrigan, Author of "The Middle Place," "Lift," and "Glitter and Glue,” will be speaking and entertaining our group on January 30, 2016 at The Hotel Baker, 100 W Main Street, Saint Charles, Illinois. With each ticket you will receive a copy of Kelly's book Glitter and Glue. Purchase your tickets and learn more.

January 24-27, 2016 - Biology of Down Syndrome: Impacts Across the Biomedical Spectrum, Santa Fe, New Mexico

LuMind RDS-funded researchers Drs. WIlliam Mobley, Roger Reeves, and  Stephanie Sherman will all be speaking at this Down syndrome symposium in Santa Fe. Our own Dr. Harpold will be attending and exchanging information on the latest research in Down syndrome cognition research. 

February 5, 2016 - A Night of Arts and Blues, South Bend Indiana

Please join us for a Night of Arts and Blues, an epic Mardi Gras party at The Brick, 1145 Northside Boulevard, South Bend, Indiana. The event focuses on having a great time while supporting Down syndrome research, with over 250 people reveling with a live Blues band, Mardi gras masks, great New Orleans food from Chicory Cafe, and an acclaimed artist from Chicago who will create amazing original art live during the event. Learn more.

March 3-6, 2016 - Down Syndrome Affiliates in Action Conference, Charlotte, NC

We hope to see you at the annual conference of Down syndrome affiliate organizations. Dr. Harpold will be speaking on the latest in cognition research and Kate Dochelli will be presenting on our wonderful Runners Program.

View past events >>


In the News

LuMind Foundation and Research Down Syndrome Merge

March 2, 2015

LuMind Foundation Announces 2014-2015 Research Grants

September 10, 2014

National Public Radio Features LuMind-Funded Researchers

NPR, August 25, 2014

Health Beat: Down Syndrome: The Key to Alzheimer's disease?

WFMZ, San Diego - July 18, 2014

"Support Cells" in Brain Play Important Role in Down Syndrome

BioScience Technology - July 18, 2014

In Science of Down Syndrome, Another Piece of the Puzzle

Modern Messy - May 20, 2014

Research News Could Lead to New Lines of Investigation

April 2014

Shoddy Sorting Disrupts Memory-Making Signals

AStar Research - April 23, 2014

Can Down Syndrome Research Also Help Alzheimer's Patients?

Cape Cod Times — March 21, 2014

People With Intellectual Disabilities Get a Say in Drug Trials

Wall Street Journal – March 10, 2014

IQ Boosting Drugs Aim to Help Kids with Down Syndrome Learn

Bloomberg News – March 3, 2014

New Drugs May Transform Down Syndrome

Scientific American – March 1, 2014

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

© 2018 LuMind Foundation. All Rights Reserved.