Events

 

The LuMind Research Down Syndrome Foundation has realized tremendous momentum over the past few years with respect to fundraising events. Our volunteers have held events from Washington to New York to North Carolina and Florida to California.

Events vary in size and theme, from family-centered events like musical celebrations and the Romp for Research to cocktail parties, research presentations and golf outings. Some volunteers have even turned their family birthday parties into an opportunity to raise funds for cognition research.

We owe the success of these events to those of you who have joined us to be part of the research breakthroughs. Please help us continue this success by organizing an event in your area. We have toolkits, ideas and plenty of appreciation if you are interested in holding an event. Contact us at 508.630.2177 or LuMind@LuMindFoundation to learn more.

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Upcoming Events

January 30, 2016, 7:00 PM - Glitter and Glue: A Night with New York Times Best Selling Author Kelly Corrigan, Saint Charles, Illinois

Kelly Corrigan, Author of "The Middle Place," "Lift," and "Glitter and Glue,” will be speaking and entertaining our group on January 30, 2016 at The Hotel Baker, 100 W Main Street, Saint Charles, Illinois. With each ticket you will receive a copy of Kelly's book Glitter and Glue. Purchase your tickets and learn more.

January 24-27, 2016 - Biology of Down Syndrome: Impacts Across the Biomedical Spectrum, Santa Fe, New Mexico

LuMind RDS-funded researchers Drs. WIlliam Mobley, Roger Reeves, and  Stephanie Sherman will all be speaking at this Down syndrome symposium in Santa Fe. Our own Dr. Harpold will be attending and exchanging information on the latest research in Down syndrome cognition research. 

February 5, 2016 - A Night of Arts and Blues, South Bend Indiana

Please join us for a Night of Arts and Blues, an epic Mardi Gras party at The Brick, 1145 Northside Boulevard, South Bend, Indiana. The event focuses on having a great time while supporting Down syndrome research, with over 250 people reveling with a live Blues band, Mardi gras masks, great New Orleans food from Chicory Cafe, and an acclaimed artist from Chicago who will create amazing original art live during the event. Learn more.

March 3-6, 2016 - Down Syndrome Affiliates in Action Conference, Charlotte, NC

We hope to see you at the annual conference of Down syndrome affiliate organizations. Dr. Harpold will be speaking on the latest in cognition research and Kate Dochelli will be presenting on our wonderful Runners Program.

View past events >>

 

Past Events

November 7, 2015

Connecticut Down Syndrome Congress

Our fabulous Board Member Amy Allison presented at the 30th Annual CDSC Convention in Westbrook, Connecticut. Amy was the key note speaker and shared her vast knowledge as the Executive Director of the Down Syndrome Guild of Greater Kansas City and strategies to help build a strong support network for people with Down syndrome. View Amy's presentation here.

November 6, 2015

Tribute 21 Gala

Don your fancy attire for this DC event supporting Down syndrome cognition research and the Tribute 21 Fund. Learn more and purchase your tickets here.

October 21, 2015 2:00 pm ET

Research Webinar with Dr. Reeves and Dr. Worley - Johns Hopkins University

Join us for an update on LuMind RDS funded research out of Johns Hopkins University in Maryland. We'll be joined by Drs. Reeves and Worley who will educate and update us on the three projects they are working on related to improving Down syndrome cognition. If you want a preview of what will be covered, you can learn more about the 2015-2016 projects we've just funded for these brilliant researchers on our grants announcement page. Register for the webinar today!

October 17, 2015

Funding Futures

Join the Chicagoland crew of dedicated supporters for a night of live music, food and fun at Fitzgerald's in Berwyn, IL. Check out the latest newsletter and learn how to join in on the event website.

October 16, 2015

Ashley Rose Golf Tournament, Virginia

The 5th Annual Ashley Rose Classic is back in Virginia! We've enjoyed celebrating the beautiful Ashley Rose as she's grown over the past 5 years. So join in the celebration and play golf to benefit LuMind Research Down Syndrome Foundation and cognition research! Learn more, register or make a donation.

October 11, 2015

ROMP for Research - 10th Anniversary, NYC

The ROMP is back, New York! One of LuMind RDS's signature events is back with ten years of fun packed into one day. Click here to learn more - and SIGN UP YOUR ROMP TEAM TODAY!

October 11, 2015

Chicago Marathon

Go LuMind RDS Runners! We have 7 Runners representing Down syndrome cognition research at the Chicago Marathon. If you are in the Windy City, please cheer them on and consider giving their fundraising a boost with a donation.

October 10, 2015

Alexander's Angels Buddy Walk, Long Island, NY

LuMind RDS will be visiting with our dear friends on Long Island during their 9th Annual Buddy Walk. Check out this 2015 preview from a local news station featuring founder Esther Gomez-Nieto and self-advocate, Kyle Erickson. Learn more about this incredible organization and as well as how you can show Long Island support on October 10, 2015.

October 9-10, 2015

International Mosiac Down Syndrome Association Research Retreat, Fitchburg, MA

LuMind RDS will have a table at the Annual IMDSA Research Retreat. We'll be talking about cognition research and joining other great researchers in the field. Stop by and say hello!

September 30, 2015

Grants Announcement Webinar

This is our favorite time of year! Learn how your donations are hard at work propelling discoveries from the lab bench to reality. Dr. Michael Harpold will describe the 2015-2016 recipients of $1.6 million in grants. If you can't make it, please still register and we will forward you the recording, so you can get all the news on your own time. Register here.

Summer/Fall 2015

100 Hole Hike, Your Local Golf Course

Are you a golf warrior? Do you think you can play 100 holes of golf in one day to support Down syndrome research? Join Alan Gard and other golf warriors across the nation in the Hundred Hole Hike Challenge. Learn more and join up today!

September 24, 2015

Research Presentation, DSACT

We're delighted to be presenting a presentation with support of the Down Syndrome Association of Central Texas on Thursday, September 24th on the Current State of Down Syndrome Cognitive Research. There will be a reception from 6pm-7pm followed by the presentation from 7pm-9pm in the Norman Hackerman Building on the UT campus (100 E. 24th St, Austin 78712). Presentations will be given by Michael Harpold, PhD, Chief Scientific Officer of the LuMind RDS and Jon Pierce-Shimomura, PhD, Assistant Professor, Department of Neuroscience and Fellow, Waggoner Center for Alcohol and Addiction Research. Please see the DSACT website for more details.

September 16, 2015

Hayes PMC Golf Outing, Belleville, Illinois

Join the wonderful folks of Hayes PMC at the Far Oaks Golf Club for a beautiful day of golf to support Down syndrome cognition research. Learn more or register on the event page.

August 20, 2015

Hayes Mechanical Golf Tournament, Michigan

The second annual Hayes Mechanical golf event is being held in the heart of Michigan's Great Lakes Bay Region at Apple Mountain Golf Freeland, MI. For more information, please contact Jim Zwick at jzwick@hayesmechanical.com.

August 10, 2015

Hayes Mechanical Golf Outing, Omaha, NE

The second annual Omaha, Nebraska golf outing to support cognition research is back! Learn more and register at the event site.

July 27-29, 2015

American Academy of Developmental Medicine and Dentistry

Dr. Michael Harpold will be part of a research panel at the AADMD conference in Los Angeles. 

July 25-26, 2015

24 Hour Relay for Research, New Jersey

What can be done in 24 hours to ignite Down syndrome research? Join a 24-hour relay and raise funds for this cause! Learn more, sign up for a leg of the relay, or make a donation.

June 23, 2015

Research Presentation - Elmhurst, IL

Please join us on Thursday, July 23, 2015 at at 7:00 PM at the Community Bank of Elmhurst in the Hammersmith Community Room on the 2nd Floor at 330 W. Butterfield Road, Elmhurst, Illinois. LuMind RDS Foundation President and CEO Carolyn Cronin will provide an update on LuMind RDS’s future goals and Robert (Bob) Schoen Ph.D. Director, Donor and Event Engagement will provide a research overview. There will be a short presentation along with the opportunity to socialize and meet other parents.  Drinks and snacks provided.  Adults only please.

July 6-8, 2015

Second Annual Race for Research, North and South Carolina

Join us as we weave our way through NASCAR history during the second annual Race for Resaerch. We're happy to have NASCAR Driver David Ragan and his wife Jacquelyn back as our honorary co-chairs. Start a team - actual or virtual or make a donation in support of a team or participant. Learn more on the event website. 

June 24, 2015

Research Presentation, New York City

You're invited to join us in the big apple to learn about our exciting plans for research. Learn more and register on our event page.

June 23, 2015

Hayes Mechanical Golf Outing, Chicago, Illinois

We're back for the 8th annual Hayes Mechanical Chicago Golf Outing to benefit the LuMind RDS Foundation. To learn more, please contact Isabel Sultanian

 

June 25-28, 2015

NDSC Conference, Phoenix, AZ

Dr. Harpold will be presenting the latest on Down syndrome cognition research at the annual convention held by the National Down Syndrome Congress. We'll have an exhibit table - stop by and say hello!

June 18, 2015

Research Presentation: Miami Valley Down Syndrome Association

LuMind Research Down Syndrome's Dr. Robert Schoen will be presenting a research update sponsored by the Miami Valley Down Syndrome Association in Dayton, OH on June 18, 2015 at 6:30pm at the Job Center Cafeteria, 1133 S. Edwin C. Moses Blvd. Dayton, OH 45417. RSVP by June 16th to office@mvdsa.org or 937-222-0744.

June 6, 2015

We Have Hope

Thank you to the Taylor Family for their continued support and opening their home during a dinner fundraiser supporting Down syndrome cognition research. Thanks to supporters like the Taylors, we ALL have hope!

June 4-7, 2015

T21RS International Conference 2015

Researchers - join LuMind Research Down Syndrome in the inaugural T21RS International Conference 2015: Changing Paradigms in Down Syndrome in Paris from June 4 - 7, 2015. Learn more.

May 29, 2015

Jackapalooza

Chicago area friends - Jackapalooza is back with a new format. Please save the date to join us at a 21 and older event showcasing an evening of entertainment to benefit LuMind Research Down Syndrome Foundation. The event is Friday, May 29, 2015, 4:00 pm - 10:00 pm at the Park Ridge Country Club in Park Ridge, IL. Join us for a silent auction, raffle, entertainment and lots of laughs. Learn more on the event web page.

May 2, 2015

Recognition Dinner

LuMind Research Down Syndrome is holding our inaugural Recognition Dinner in the Seattle area. We will be recognizing the leading minds in research and thanking our very valued volunteers, donors, and supporters. Visit the event page to learn more details!

April 16, 2015

Brinks Charity Golf Event

Join us in a four-person scramble golf tournament benefitting Down syndrome cognition research. Learn more.

April 11, 2015

DSAGC Health Awareness Day

LuMind Foundation will be attending the Health Awareness Day organized by the Down Syndrome Association of Greater Cincinnati.  Dr. Harpold will be presenting at 9:00 am. Click here to learn more and register.

March 21, 2015

World Down Syndrome Day!

Please join us in celebrating this international day celebrating the lives, accomplishments and inspiration of people with Down syndrome. Once again the LuMind Foundation will be offering a 3:1 match for all donations received during the WDSD celebration. Watch our web and social sites for more information on our activities.

March 21, 2015,  2:00 pm – 4:00 pm

WDSD Party at the Brooklyn Museum, Brooklyn, NY

LuMind Foundation will be joining Gigi's Playhouse, NDSS, and the Brooklyn Museum in recognizing WDSD with a celebration centered around the work of Judith Scott, and amazing textile artist, who also happened to have Ds. Click here for more information and to register.

March 21, 22, 23, 2015

e321 Conference

Dr. Michael Harpold is participating in the e321 Conference, holding a webinar on " Advances in Down Syndrome Cognition Research - “Seizing the Momentum”- Unprecedented Progress in Translating Biomedical Research Discoveries into New Therapies." Visit the e321 website for more information and to register.

March 5-8, 2015

DSAIA, Las Vegas, NV

Join the folks from LuMind and RDS at our first appearance as the combined LuMind Research Down Syndrome Foundation. Dr. Harpold is making a presentation and we will have a table. Please stop by and say hello!

February 28, 2015 - POSTPONED

Glitter and Glue: A Night with New York Times Best Selling Author Kelly Corrigan


January 29, 2015, 1:00 pm EST/10:00 am PST

Research Webinar with Dr. William Mobley from the University of California, San Diego and Dr. Jamie Edgin, University of Arizona.

Please join Down syndrome researchers Drs. Mobley and Edgin for a research presentation update on their latest findings. Please click here to register for the event.

November 2, 2014

Research 101: Cognition Research Update - Presentation, Researcher Q&A and Lab Tour

Join the Silicon Valley Down Syndrome Network, LuMind Foundation and the Down Syndrome Research Center at Stanford  on Sunday November 2, 2014 from 2:00 pm - 4:00 pm at Stanford University, Herrin Hall, Room T175 (Biology Department). More information and to RSVP.

November 1, 2014

One Extra Reason to Live, Love, and Hope

Save the date and join us for the ninth annual SoCal benefit for LuMind! Silent Auction and more! Click here for information.

October 18, 2014

Funding Futures

It's back, Chicago! One of the most fun events is back at Lizzie McNeill's on the river in downtown Chicago. Join us for fun, dancing, music, and a silent auction! Learn more.

October 15, 2014

Webinar: The Role of Research in the Life of a Person with Down syndrome: Progress, Updates, and a Look into the Future

Thank you to everyone who joined us for this webinar featuring speakers from LuMind Foundation, DS-Connect®/NIH and Down Syndrome Louisville. To listen to a replay, click here.

October 12, 2014

ROMP FOR RESEARCH

Join the 9th annual ROMP FOR RESEARCH in New York City. Click here to learn more or start a team.

October 10, 2014

Ashley Rose Golf Classic

Enjoy a beautiful fall day playing golf in the foothills of Bull Run Mountain in Haymarket, Virginia. This is the fourth annual golf outing to support LuMind Foundation and we are so happy to have everyone involved on our team. Check out the course, named the best public course in the DC area: Bull Run Country ClubClick here for registration details.

October 7, 2014

National Press Club Event

LuMind-funded researcher Dr. Roger Reeves will be part of an expert panel following the screening of the film "Just Like You!" More details on the National Press Club website.

October 3-5, 2014

International Mosiac Down Syndrome Association Research and Retreat Weekend

Learn more about the research weekend open to all with Down syndrome. Thank you to IMDSA for sponsosring such a great event! 

September 29, 2014

Hayes Mechanical Golf Outing

Hayes Mechanical wraps up its summer of support for LuMind Foundation by hosting a golf outing at The Players Club in Omaha, Nebraska. For more information and to sponsor or register for the event, please contact Kristin Dohse at 402-779-7323.

September 27, 2014

The Big Windy - A Night of Comedy to Support Down Syndrome Organizations

Our good friends over at Stand Up For Downs are helping us raise some money through laughter. The Big Windy is coming to the Chicago area (Elmhurst, Illinois) on September 27th beginning at 8:00 pm. It’s going to be one hilarious and incredibly entertaining night of comedy, food, drinks, silent auction, and dueling pianos. For details and ticket information, go to www.standupfordowns.org. Thank you Rob, Ellen and all the great folks at Stand Up for Downs!

September 10, 2014

Hayes PMC Golf Event

Join Hayes PMC for the inaugural golf outing to support the LuMind Foundation. The golf tournament will be held at The Orchards Golf Club in Belleville, Illinois. Registration is open now! Learn more and sign up for your foursome or sponsorship today

August 21, 2014

Hayes Mechanical Golf Tournament

Hayes Mechanical is holding a golf outing on Thursday, August 21 at  Apple Mountain in Freeland, Michigan. Get in a few more rounds and support a great cause! Learn more and sign up for your foursome or sponsorship today.

August 21, 2014

Research 101: Dramatic Progress in Down Syndrome Cognition Research: Mind to Lab Bench to Bedside

Dr. Michael Harpold will be joining DADS of Southeast Michigan presenting the latest advances on cognition development research. The presentation is on Thursday, August 21, beginning at 6:00 pm with a complimentary buffet, followed by the presentation at 6:45 pm. The meeting will be at the Club Venetian Banquet Center in Madison Heights. Reservations required: DADSofSEM@gmail.com

August 17, 2014

Research 101: Research Matters…..and Right NOW is a Game Changer: Dramatic Progress in Translating Biomedical Down Syndrome Cognition Research

Dr. Michael Harpold will be presenting at a meeting of the Down Syndrome Louisville on August 17, 2014 from 2:00 pm - 4:00 pm at the DSL office at 5001 South Hurstbourne Parkway in Louisville. Visit the DSL site for more information and to register. RSVP required.

July 5, 2014

Hampton Hoops for Research

Forty local basketball enthusiasts will be hooping it up for cognition research at Sportime in Amagansett, NY on Saturday July 5 to celebrate Independence Day and raise money for LuMind Foundation. If you are in the Hamptons, please come by to support the athletes as they pass, shoot, dribble and score for cognition research. The fun begins at 9:00 am and commences with a championship round at noon. For more information, here's an article about the multi-generational fun at last year's event.

June 16-18, 2014

Race for Research

The race is on! We're gearing up for our inaugural Race for Research, a three-day road rally to raise funds for Down syndrome cognition research. Set for June 16-18, 2014, the event will be helmed by our Honorary Co-Chairs, David Ragan, third-generation NASCAR driver, and his wife, Jacquelyn, as teams of friends and supporters take to the North Carolina highways, navigating their way from the green flag in Winston-Salem to the finish line at Charlotte’s NASCAR Hall of Fame.

June 17, 2014

Hayes Mechanical Golf Tournament

Chicago contracting company Hayes Mechanical presents its seventh annual Golf Outing to benefit LuMind. With more than half a million dollars raised for Down syndrome cognition research so far, we look forward to another great day with friends and supporters at Chicago's Harborside Golf Club. Click here to see photos of the 2014 event.

June 14, 2014

We Have Hope

We Have Hope is a Richmond, Virginia area fundraiser for Down syndrome research that honors Hope Taylor. Bring your dancing shoes to enjoy the music of Allyson and Curtis Mills and participate in a silent auction. Join us on Saturday, June 24th, 2014 at 7:00 pm. Visit the website for more details and to view an inspirational message from Hope and her family.  

May 16, 2014

Dramatic Progress in Translating Biomedical Down Syndrome Cognition Research Discoveries into New Therapies

Join the Down Syndrome Association of Greater Richmond and LuMind Foundation for a presentation on the very latest advances in Ds research and clinical trials. The presentation is on May 16, 2014 (Friday) from 7:00 pm – 8:30 pm at All Saints Episcopal Church, Richmond, VA. Dinner starts at 6pm, childcare provided. RSVP to rsvpdsagr@yahoo.com. View Dr. Harpold's presentation here.

May 12, 2014

Free Webinar in Honor of Mothers and Caregivers

Mothers across the globe are the same, they always think of others. This May, we are thinking of all the caregivers who want to learn more about how to give their loves ones the most opportunities possible. Join us for a free webinar presented by LuMind-funded researcher Dr. Jamie Edgin from the University of Arizona. In her presentation, Dr. Edgin will provide an update on the current state of work on memory formation and sleep-dependent learning in children and young adults with Down syndrome. Click here to sign up for the webinar and consider honoring your mother with a donation to the LuMind Foundation. 

April 26, 2014

Jackapalooza

Friends making beautiful music together at this Chicago-area benefit to support LuMind Foundation. For the second year, young musicians from the Music Institute of Chicago will wow listeners at this charity concert at Wilmette Junior High School in Wilmette, IL. Thank you to the gifted students who volunteered to perform and the numerous volunteers and supporters who gave time and dollars to make the event a success. See pictures from the event. Your dedication is music to our ears!

March 22, 2014

Signs of Support

Friends and supporters joined us for this musical morning of fun with Rachel Coleman — this Signing Time! concert to benefit LuMind Foundation offered a colorful celebration of World Down Syndrome Day, communication, and community. Thank you to all who attended, and to the energetic volunteers who brought this event to life.

March 1, 2014

Hoops for Hope

On Saturday, March 1, teens in central New Jersey took it to the hoop to improve the lives of those with Down syndrome. This three-on-three basketball tournament at Watchung’s Valley View School gym was open to all kids grades five through nine, with proceeds benefitting the LuMind Foundation. Our sincere gratitude goes to Ryan Lister, a senior at The Pingry School in Basking Ridge, NJ, who founded and organized this event — thanks, Ryan, for taking LuMind to the top of the key!

November 18, 2013

Race for Research Kickoff and DS Cognition Research Update: Charlotte, NC

At this fast-paced event we kicked off planning for 2014's inaugural Race for Research, a three-day road rally through North Carolina to raise funds for Ds cognition research! Our kickoff was followed by an engaging, accessible look at recent advances in Down syndrome cognition research, including ongoing clinical trials and potential future directions. Thank you to all who attended this free program hosted by the Down Syndrome Association of Greater Charlotte.

November 2, 2013

DS Cognition Research Update: Bay Area, CA

What's happening in the world of Ds cognition research? Our audience found out from some of the foremost researchers in the field as Drs. Craig Garner, Craig Heller, and Ahmad Salehi, all of Stanford University, spoke during this informative, accessible presentation. Thank you to our speakers, and to all who attended.

November 2, 2013

One Extra Reason to Live, Love, and Hope

This year marked the eighth annual SoCal benefit for LuMind! This Harbor City gala event offered food, refreshments, casino games, and a silent auction — we were joined by UCSD's Dr. William Mobley, and enoyed a rare viewing of a private car collection as we shared this unforgettable evening to benefit research. We thank everyone who attended, and the event's generous organizers, for supporting LuMind's mission!

October 26, 2013

Funding Futures

Chicago's Goose Island Brewery was the setting for this unforgettable night of fun and friendship, featuring live music, a silent auction, delicious appetizers, and, of course, cold craft beer, all in support of LuMind. Thank you to all who attended, and to everyone who helps fund futures, made even brighter by the promise of Ds cognition research.

October 13, 2013

Romp for Research

This family fun day at New York City's Asphalt Green is one of LuMind's most popular events. Thank you all for joining us to celebrate the Romp's eighth year — and for helping support the groundbreaking cognition research we fund.

October 9, 2013

DS Cognition Research Update: Long Island, NY

Plainview, Long Island, NY was the site of this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for LuMind.  Attendees heard directly from Dr. Harpold about LuMind’s current research investments and the clinical trials now underway — thank you for attending!

October 7, 2013
A Swing for Hope

A Swing for Hope, a day on the links to benefit LuMind, was a swinging success! Now in its fourth year, A Swing for Hope featured golf, refreshments, contests, auctions, a cocktail hour, and more. Thank you for joining us for this all-day affair to support cognition research — and for helping us drive towards our goal.

12th Annual LuMind Foundation Golf Tournament

October 6, 2013

The International Golf Club & Resort in Bolton, MA was the site of this year's annual Boston-area golf outing to benefit LuMind. In addition to an unforgettable fall day on the links, the tourney offered continental breakfast, lunch, awards, and an auction. We thank all our friends who showed up bright and early to help us roll out for research!

Alexander's Angels Buddy Walk 2013

October 5, 2013

Once again Alexander's Angels banded together for their annual Buddy Walk! 2013's Walk was their seventh yearly outing, with funds raised to fund local programs and services; promote Ds advocacy and awareness; and support Ds cognition research. Thank you to our friends who took us along for the walk! 

Team Fede: Buddy Walk 2013

October 5, 2013

Vittoria Aiello and Massimiliano Albanese laced up and headed out in honor of their daughter, Federica, and will be donating the proceeds of their Buddy Walk to DSRTF!  Thanks, Vittoria and Massimiliano — we appreciate every step you take to fund cognition research.

DS Cognition Research Update: Austin, TX

September 17, 2013

The campus of UT Austin was the setting for this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for DSRTF and Jon Pierce-Shimomura, Assistant Professor of Neurobiology at The University of Texas at Austin.  Thank you to all who attended, making the evening such a success. View presentations and pictures from this enlightening event.

NDSC Convention

July 19-21, 2013

DSRTF participated in the 41st annual convention of the National Down Syndrome Congress in Denver, CO, and hosted New Possibilities in DS Research: DSRTF Works Deliver Improved Cognition for People with DS — thanks to the many who attended our session, and all those who stopped by our booth to say hello!

Let the Angels In

June 28-30, 2013

Dancer Juliet Dolan and DSRTF friend Alexander’s Angels presented a night of music and magic to support DS cognition research — Juliet, a recent graduate from Queens College, is donating all proceeds from this production, her first, to Alexander’s Angels — her sister Jillian, who has DS, was a guest performer.  Thank you, Juliet, for this unforgettable night!

Hayes Mechanical Golf Outing

June 18, 2013

Chicago contracting company Hayes Mechanical presented its sixth annual Golf Outing to benefit DSRTF. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. We thank the entire team at Hayes for making this event such a success — and for your unflagging support of the research DSRTF funds.

Ashley Rose Golf Classic

June 10, 2013

The beautiful Bull Run Golf Club in Haymarket, VA was the setting for this tournament in honor of "awesome Ashley"! In its third year, this event included continental breakfast, complimentary beverages, and an awards dinner, as well as a silent auction, door prizes, and contests. We thank the Kannan family for another great year of supporting DS cognition research.

Down Syndrome Cognition Research Update

June 2, 2013

The campus of Stanford University was the setting for this free informational session featuring some of the researchers DSRTF supports, Dr. Craig Garner, Dr. Craig Heller, and Dr. Ahmad Salehi. We were proud to present this chance for you to hear directly from scientists in the field about their current projects and clinical trials now underway — and so pleased to meet all of you who attended. Thank you for joining us!

We Have Hope

June 1, 2013

Once again the Taylor family hosted this annual event in the Richmond, VA area in honor of their daughter, Hope.  This year friends gathered for tapas, sangria, and dancing— thank you to the Taylors for making DSRTF part of your special night!

DS Cognition Research: A Mother's Perspective

May 31, 2013

This month our webinar gave a mother’s perspective on cognition research, featuring moms you can relate to: women who celebrate their children’s strengths, while realistically acknowledging the challenges they face.  We were honored to be joined by Down Syndrome Education International's Professor Sue Buckley. Thank you to Professor Buckley, and to everyone who attended.

Drive for Downs

May 2013

Scott LaMorte, father of six-year-old Emma, logged eight days on legendary Route 66, from Chicago to LA, running down the miles and collecting donations in support of cognition research.  We thank him for taking DSRTF along for the ride!

Jackapalooza

April 27, 2013

Friends made beautiful music together at this Chicago-area benefit to support DSRTF.  Young musicians wowed listeners at this charity concert in Wilmette, IL, in this evening of culture and camaraderie.  Our sincere thanks to the Villalobos family, all who attended, and the gifted students who generously gave their talents and time to move cognition research forward!

Webinar: Introduction to Down Syndrome Cognition Research

March 21, 2013

In this special World Down Syndrome Day event, Dr. Michael Harpold of DSRTF and Roche's Dr. Omar Khwaja introduced the basics of cognition research, discussed current research initiatives, and reported on clinical trials now underway. This session offered an informative, accessible presentation appropriate for those new to the topic, and included audience questions answered as time allowed.  View the webinar here.

Webinar: Dr. H. Craig Heller

January 29, 2013

Dr. Heller, an expert in the area of sleep and co-director of Stanford's Down Syndrome Research Center joined us for our January webinar to discuss the roles that sleep and circadian rhythm may play in the cognitive impairment that occurs in people with DS, and described the potential of pentylenetetrazol (PTZ) to improve cognition.Watch his presentation now.

Webinar: Affiliate Roundtable

December 4, 2012

Leaders of affiliate groups around the country joined us for a roundtable discussion to offer an introduction to cognition research and DSRTF, and to give us the opportunity to hear the concerns and priorities of groups serving those with DS and their loved ones.  Our thanks to each leader who participated — we're glad you took the time to get to know us.

First Annual Funding Futures Benefit

October 27, 2012

Chicago-area friends joined us for a fun filled evening complete with delicious food, great music, refreshing Goose Island craft brews, fabulous raffle prizes and friendship. This was an event to remember, all to support DSRTF. Thank you, friends and supporters, for your hard work and high spirits!

Webinar: Dr. Roger Reeves

October 16, 2012

In this special Down Syndrome Awareness Month presentation, Dr. Roger Reeves of Johns Hopkins gave his perspective on the current landscape of cognition research and the challenges and possibilities that lie ahead. Did you miss this collaboration between DSRTF and the National Down Syndrome Society (NDSS)? You can watch the session here.

Upside of Down Charity Golf Tournament

October 8, 2012

This inaugural event in Austin, TX presented by Upside of Down offered golf, lunch, dinner, drinks, and prizes -- all to support camp scholarships for people with Down syndrome and DSRTF’s research. Thank you to our friends in Texas for making us part of this successful event.

Romp for Research

October 7, 2012

Our New York Romp for Research was our seventh annual outing, and a great time was had by all! This full day of family fun at NYC's world-famous Asphalt Green featured food, entertainment, and games, and an amazing opportunity to come together to celebrate our loved ones with Down syndrome. Thank you all for being part of such a memorable day.

Swing for Hope

October 4, 2012

Contests, an auction, a raffle, cocktails, and dinner followed this crisp fall day on the golf course in Manhasset, NY, to further the cause of research. We're so glad you could join us, and grateful for your support.

National Association for Down Syndrome Conference: "Lunch and Learn" session

September 29, 2012

This noontime discussion presented by DSRTF covered current exciting advances in Down syndrome reseach, including Roche's ongoing clinical trials, as part of the annual NADS conference in Rosemont, IL. Thank you for joining us.

11th Annual Charity Golf Tournament

September 23, 2012

Friends and supporters joined us in Bolton, MA for a day on the links to benefit research, including a patio barbecue, an awards ceremony, and an exciting charity auction. Thanks for hitting the green in support of DSRTF!

One Extra Reason to Live, Love, Hope

August 25, 2012

The seventh annual One Extra Reason to Live, Love, Hope gala hosted by the South Bay Down Syndrome Association was an unforgettable evening of camaraderie and commitment as friends of DSRTF gathered to share cocktails, bid on auction items, and support the groundbreaking work we do in support of people with Down syndrome. Thank you to all who made the night memorable, and who continue to help us move research forward!

National Down Syndrome Congress Convention

July 19-22, 2012

Each year thousands of people come together at the NDSC's annual convention to talk with experts, connect with families, and share the successes and challenges of life with Down syndrome. DSRTF was there to meet you, say hello, and spread the excitement about the promising work we support. Thanks for stopping by our booth -- see you at the convention next year!

Hayes Mechanical Golf Outing

June 19, 2012

Chicago contracting company Hayes Mechanical presented its fifth annual Golf Outing to benefit DSRTF.  Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research.  Thank you, Hayes employees, families, and friends for your continuing support!

We Have Hope

June 2, 2012

The Taylor family celebrated their daughter Hope's many abilities and accomplishments at their annual fundraiser for DSRTF: "a party full of people coming together for this, our most precious cause." Thank you, Jill and JT Taylor!

May Webinar: Dr. Jon Pierce-Shimomura

May 22, 2012

We were pleased to welcome Dr. Jon Pierce-Shimomura of the University of Texas at Austin to our continuing series of webinars.  Dr. Pierce-Shimomura, neurobiologist and parent of a child with Down syndrome, is conducting innovative research on Down syndrome and Alzheimer's disease using tiny worms to understand the neural degeneration that occurs with aging.  Listen online to his exciting perspective on cutting-edge research.

Scientific Advisory Board Annual Meeting

April 2012

At the heart of DSRTF's mission is the collaborative process, through which researchers share and build on their advances across multiple disciplines.  At the yearly meeting of our Scientific Advisory Board, this network of advisors convened to provide critical perspective, advice, and recommendations to the DSRTF Board of Directors.

World Down Syndrome Day

March 21, 2012

DSRTF celebrated the UN's official recognition of World Down Syndrome Day by participating in the "Building Our Future" conference alongside self-advocates, educators, and specialists in the field.  We offered a special webinar with noted researcher Dr. Roger Reeves of Johns Hopkins University.  And thanks to our supporters, we raised over $425,000 for Down syndrome cognition research!

February Webinar: Dr. William Mobley

February 28, 2012

Our monthly webinar series continued with a presentation by UCSD's Dr. William Mobley, featuring an engaging overview of current Down syndrome cognition research.

Party with a Purpose

December 17, 2011

The scene: A Chicago-area pub. The soundtrack: '60s rock tribute band The New Invaders. The people: Nearly 100 friends gathered in the spirit of giving. The reason: Celebrating the amazing potential of people with Down syndrome. This Christmastime event was conceived by a supporter who wanted to give her friends the gift of music, fun, and community. She asked in return that they give to her charity of choice — DSRTF. This wildly successful event raised $10,000 for cognition research. Thank you, friends, for your amazing generosity!

Hair MD Salon Cut-A-Thon for Down Syndrome - Shelbyville, MD - October 15, 2011

2nd Annual Ashley Rose Golf Classic- October 3, 2011

A Swing for Hope Golf Outing- October 3, 2011

6th Annual Romp for Research- Asphalt Green- New York City- October 2, 2011

Alexander's Angels 5th Annual Buddy Walk- Eisenhower Park, East Meadow- October 1, 2011

10th Annual DSRTF Charity Golf Tournament- September 11, 2011- Stow, MA

One eXtra Reason Research Rocks!!! Event August 27, 2011

Hula for Hope- Virginia- June 4, 2011

Events

 

 

 

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LuMind Research Down Syndrome Foundation

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