LEADERSHIP

The Down Syndrome Research and Treatment Foundation was founded in 2004 by a dedicated group of parents and leading scientists who are committed to finding treatments to improve learning, memory, and speech, and prevent the early onset of Alzheimer's Disease in persons with Down syndrome. We changed our name to the LuMind Foundation in 2014 and merged with Research Down Syndrome in 2015 to create LuMind Research Down Syndrome Foundation.

Staff Management Team

 
Carolyn Cronin
Kate Dochelli
Michael Harpold, Ph.D. 
Ellen Oliver
Anne Tippett

 

Amy Allison, Kansas City, Missouri

Amy AllisonAmy Allison currently serves as the Executive Director of the Down Syndrome Guild of Greater Kansas City (DSG). DSG, founded in 1984 by a group of dedicated parents of children with Down syndrome, provides programs and services to improve the quality of life for individuals with Down syndrome and their families. DSG serves over 800 families caring for a loved one with Down syndrome in the greater Kansas City area on both sides of the state line. In addition to her work with DSG, Amy Allison serves as a member of the Board of Directors for Down Syndrome Affiliates In Action (DSAIA). In 2009, Amy’s leadership and expertise helped DSAIA organize a conference in Washington DC where more than 300 Down syndrome advocates from 35 states gathered at the U.S. capitol to lobby Capitol Hill. The purpose of this effort was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities and to raise additional support for Down syndrome related causes.

Amy received a double bachelor’s degree in psychology and sociology from Brigham Young University.

Terry W. AnCel, Chicago, Illinois

Terry AnCel currently serves as President/CEO of Chicago-area contracting company Hayes Mechanical, a pioneer in the boiler, construction, and repair industry. With Terry at the helm, Hayes Mechanical is experiencing a steady, well-planned growth program. The company has a special loyalty to the city it has called home for now over 90 years. Out of that loyalty arises a sense of civic duty: Mr. AnCel, for example, has served as Chairman of the Martin Luther King Scholarship Dinner Committee through the Illinois Commission on Diversity and Human Relations, helping award college scholarships to Chicago public school students.Terry also serves as Chairman of Power Maintenance Construction in Bellevue, IL; Trustee of International Pension Fund for the Boilermakers in Kansas City, MO; and Director, Winfield Community Bank in Winfield, IL.  

With Hayes Mechanical as the lead sponsor, Terry’s family and friends presented its seventh annual Golf Outing to benefit LuMind in 2014. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. His youngest daughter, Christine, has been the face of the Hayes Annual Golf Outing since its inception.

Terry is married to Carol and has seven children and three grandchildren. Terry received his BA from University of Minnesota.

Shon Christy, Akron, Ohio

A social media and marketing expert, Shon Christy recently launched Focal Point Social Media, a marketing firm concentrating solely on developing and implementing social media programs that deliver the highest return on investment for clients. Christy leads Focal Point’s extensive marketing portfolio including international and local companies in the medical, professional services, municipalities, manufacturing, retail and restaurant industries. His work has been featured in Inside Business; Smart Business; the Akron Beacon Journal; and the Young Professional Roadmap.  

Shon and his wife Brittany are parents to five beautiful children, including an wonderful, playful son named Beckett who has Down syndrome. 

Margie Doyle, Chicago, Illinois

Margie DoyleMargie Doyle serves as Community Outreach Leader for LuMind. In her volunteer role, Margie is driving a grassroots initiative to raise awareness across the US about cognition research and the critical role of LuMind in funding it. Margie is an accomplished speaker and presenter, and spoke at the UN for World Down Syndrome Day 2012 to educate and energize the public about the pursuit of greater independence and opportunity for people with DS. Margie has held numerous educational and fundraising events in the Chicago area to benefit LuMind-funded research, and continues her work of building a network of volunteers to do the same in other major metropolitan areas across the US.

Margie's passion for not-for-profit work began 15 years ago with advocacy and fundraising initiatives for the Cystic Fibrosis Foundation on behalf of her nephew. She is also active in community service, working with many groups affiliated with her Chicago area school district.

Margie and her husband have five children. Her youngest son has Down syndrome.

Daniel K. Flatley, New Vernon, New Jersey - Vice Chair

Daniel K. Flatley is General Partner, Masthead Ventures, and has more than 30 years of experience investing in early-stage information technology, media and telecommunications companies. Prior to joining Masthead, Mr. Flatley was a Managing Director at Credit Suisse First Boston and Donaldson, Lufkin and Jenrette where he was global head of a group investing in and financing satellite and telecommunications companies. Previously, Mr. Flatley was a principal in a mid-market buyout and Merger and Aquisition advisory firm.

Dan holds an AB from the University of Notre Dame, a JD from Georgetown University School of Law and a MBA from The Wharton School, University of Pennsylvania.  Mr. Flatley has a fourteen year old son with Down syndrome. 

Lara Font, Sugar Land, Texas

Lara is Owner, Font & Associates, Incorporated, which provides talent acquisition and recruiting services to companies in a variety of industries. She has served professional services, management consulting, technology, and oil and gas/energy industries the bulk of her career. She began her career with the nation’s largest privately held staffing firm where she worked for 10 years. She then joined Andersen (formerly known as Arthur Andersen) where she worked as a Corporate Human Resources & Recruiting Manager. She currently consults with industry and professional services companies on talent acquisition and recruiting best practices.

Lara holds a Bachelor’s of Science in Business Management with a concentration in Human Resources from LeTourneau University in Longview, Texas. She is an accomplished Masters runner, and Boston Marathon qualifier. Lara has successfully applied her running and fundraising talents to assist the growth of RDS Runners, the national charity race program supporting Down syndrome cognition research.

Lara and her husband Mike have four children, including five year old Parker, who has Down syndrome. 

Ryan M. Hartman, Hood River, Oregon — Board Chair

Ryan Hartman is President and CEO of Insitu Inc., a Boeing Company, a $450 million company, where he provides corporate leadership and strategic guidance, and holds responsibility for the organization's overall execution of its business plan and investments. He also serves on the Board of Directors for The Next Door, a not-for-profit organization focused on families and children in need, and is president of the National Industrial Defense Association – Pacific Northwest Chapter.

Ryan received a BS and an MS at Embry-Riddle Aeronautical University, with further study in aerospace engineering at Arizona State University. Ryan and his wife, Stephanie, have a son with Down syndrome.

Hampus Hillerstrom, Boston, Massachusetts

Hampus Hillerstrom co‐founded NeuroPhage Pharmaceuticals in 2006 , a company developing a novel approach for treating Alzheimer’s, Parkinson’s and other protein misfolding diseases, and he currentlyserves as Executive Vice President and Chief Financial Officer. Previously he spent three years as an associate at leading European biotech venture capital firm HealthCap where he participated in a large number of investment transactions including several IPOs. Hampus also spearheaded a project at AstraZeneca toevaluate decision‐making leading to Phase III clinical trials.

Hampus holds a Masters in Economics and Finance from the University of St. Gallen (Switzerland), an MBA from Harvard Business School, and an MSc in Health Sciences and Technology from MIT/HarvardMedical School (HST). Hampus and his wife have one child with Down Syndrome.

Patrick Kannan, Ashburn, Virginia

Patrick is the Vice President of Finance at Exostar, LLC., a leader in secure cloud-based solutions that improve identity access management, collaboration, and supply chain management for regulated industries.  As Vice President of Finance, he oversees the operational accounting and customer service, as well as all of Exostar’s finance and strategic planning efforts. Prior to joining  Exostar he was the Controller at Data Systems and Solutions (DS&S), a world leader in asset management and predictive maintenance.  The company is an international technology leader in various markets, including nuclear, aerospace & defense, and energy. 

Patrick has more than 20 years of finance and accounting experience.  In addition to holding and undergraduate degree in Accounting from Radford University, Patrick is a Certified Public Accountant (CPA) and a member of the American Institute for Certified Public Accountants (AICPA).

Patrick and his wife have three children, including Ashley their oldest daughter, who has Down syndrome.

Todd Kinsella, Ph.D., Palo Alto, California - Member At Large

Dr. Kinsella currently serves in the position of Vice President, Research at Rigel Pharmaceuticals, Inc. located in South San Francisco, CA. Rigel Pharmaceuticals is a clinical-stage drug development company that discovers and develops novel, small-molecule drugs and biologics for the treatment of diseases related to inflammation, oncology, metabolism and muscle dysfunction. 

Dr. Kinsella received his undergraduate degree in Molecular and Cellular Biology from the University of Arizona and earned a Ph.D. in Molecular Pharmacology from Stanford University.

Todd and his wife have five children, including a daughter who has Down syndrome.

Christopher G. Lis, Chicago, Illinois

Christopher G. Lis is a senior executive with Cancer Treatment Centers of America (CTCA), a national network of five cancer care hospitals, which recently ranked 4th out of more than 1,400 companies tracked in the YouGov BrandIndexBest Brand” survey during the first six months of 2015.  Collaborating with the leadership team, Lis helped transform CTCA’s patient experience results to rank among the highest in the nation on the ‘would recommend’ metric as measured by the external Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) Survey.  At CTCA, Mr. Lis has held roles as Vice President of Market Insights, Chief of Outcomes Research, Vice President of Research and Development, and Chief Strategy Officer. 

Mr. Lis currently serves on the board of directors of the Illinois Chapter of The Leukemia and Lymphoma Society (LLS), and on the editorial boards of two medical and scientific journals.  He has published over fifty manuscripts in the peer-reviewed medical and scientific literature, spearheaded CTCA’s inclusion into a Harvard Business School (HBS) Case, and has been interviewed and quoted regarding advice to leaders in Harvard Business School Press books, as well as a book on leadership called ‘CEO Material’ authored by New York Times Best-selling author Debra Benton.  Mr. Lis previously served on the Hospital Advisory Committee for The Leapfrog Group, on an Expert Panel for the National Patient Advocate Foundation (NPAF), and as an expert reviewer and/or invited thought leader to foreign government and private research agencies in the Netherlands, New Zealand, and England. 

Christopher and his wife Heather have four children. Their fourth child has Down syndrome.

Mike Mannor, Ph.D., Notre Dame, Indiana

Mike Mannor is a strategy professor at the University of Notre Dame. His research focuses on strategic leadership, corporate governance, and knowledge creation, with a particular emphasis on how the characteristics and experiences of CEOs and top management teams can help and hurt organizations in their pursuit of sustainable competitive advantage. His research has been published in the leading management journals and he has been interviewed or quoted on NPR, CNN, BusinessWeek, the USA Today, the LA Times, Yahoo, and a variety of other media outlets. He teaches primarily in Notre Dame’s MBA program, with classes on corporate strategy and business model innovation.

Mike holds a BS from Aquinas College, an MBA from Grand Valley State University, and a PhD from Michigan State University.  Mike and his wife have five children. Their second child, Sophia, has Down syndrome. 

Sohail Masood, Phar.D., Boston, Massachusetts

Dr. Sohail Masood, a registered pharmacist, is currently Chair and CEO of The Black Stone Investment Group.  Previously, he was the founder and owner of Crescent Healthcare, Inc. (CHI) a home infusion and healthcare company. CHI became one of the two largest wholly owned infusion companies in California before he sold CHI to Frontenec in 2004. Another of his ventures, MAAS Medical, an infusion pump manufacturing company, was sold to Baxter Healthcare International in 2008. Sohail has been recognized with numerous awards including the Ernst & Young Entrepreneur of the Year in Healthcare award.

Sohail was awarded the Doctor of Pharmacy degree from the University of Southern California and subsequently completed his residency in hospital pharmacy in Brooklyn, New York.

Sohail and his wife have two children including a son who has Down syndrome.

Deborah Morris, New York, New York

Deborah Morris is the Zonal Executive for AIG PC based in New York. In this role, Deborah is responsible for a significant book of commercial insurance including Property, Casualty, Healthcare, Financial Lines and Program business. Deborah spent the majority of her career with AIG in the International Financial Lines unit, spanning 85 countries, where she held several senior positions including COO and Commercial Institutions Manager. During her 21 years in International Financial Lines Deborah held a number of senior overseas assignments including London and Hong Kong.  

Deborah graduated with a Bachelor degree in Business Administration from the College of William and Mary. Deborah and her husband Andrew have two children; Sophia (10) and Benjamin (8).  Sophia has Down syndrome and is Deborah’s inspiration, giving rise to her passion about advocacy and therapeutic programming for people with Down syndrome. She is the Founder and President of GiGi’s Playhouse NYC, a Down syndrome awareness and achievement center located in Harlem, NYC.

Anthony Providenti, New York, New York — Board Secretary

Anthony Providenti is Vice President - Corporate Business Development and Special Counsel at Henry Schein, Inc., a Fortune 500 healthcare company.  At Henry Schein, Anthony is responsible for mergers and acquisitions and other strategic transactions that drive growth and profitability.  Anthony previously served as a senior attorney in Henry Schein’s legal department. Prior to joining Henry Schein, Anthony was a senior corporate and transactional attorney with the New York office of Gibson, Dunn & Crutcher LLP, an international law firm.

Anthony received a J.D. from Fordham University School of Law where he was a Notes and Articles Editor of the Fordham Law Review, and a B.S. from the College of Business and Economics at Lehigh University. 

Anthony and his wife have three children, including a son who has Down syndrome.

Karen Shea, Morristown, New Jersey

Karen has 25 years of Marketing and Development experience, working in both the for-profit and non-profit sectors. She played a key role in the launch of the Thomas G. Labrecque Foundation’s “Run as One” event in Central Park, New York.  This race, which attracts over 13,000 national and international participants and donors, has become a signature event for the Foundation and is now one of the world’s largest 4-mile races. Karen currently serves as the Vice President and Development Chair on the Board of Directors of the Harding Land Trust, a 501(c)3 organization dedicated to open space preservation. 

She has a long commitment to the Down syndrome community.  In addition to her involvement in numerous local Down syndrome advocacy events, she has chaired awareness and fund-raising events in support of Down syndrome cognitive research.  Karen organized and led the 2011 Pro-Am Golf Tournament, which included a clinic taught by Mike Bender, named by Golf Digest as “One of America’s Top 10 Greatest Teachers.” The event attracted numerous participants previously unfamiliar with the Down syndrome cognitive research effort. 

Karen earned her B.S. degree from Georgetown University.  Karen and her husband Rick have three daughters.

Emeritus Board Members

Ann Margaret Chrisney

Teresa Cody
Hollye Doane
Jim Dovey
Daniel Flatley
Patricia White Flatley, MD
Michael M. Harpold, PhD
Roger and Dawn Kafker
Jane Lodato
Stephen Lazare
Chris Messina
Darryl Mikuni
Andrew Miller
William Mobley, MD, PhD
Betsy Plaschke
Vince Randazzo
Hilda Templeton
Sara Weir
Sarah Wernikoff
Jim White
Patty O’Brien White

 

Staff Management Team

Carolyn Cronin, President/CEO

Carolyn Cronin, Executive Director, LuMind FoundationCarolyn Cronin has been the President and CEO for LuMind Research Down Syndrome since January 2013. In this position, Ms. Cronin provides vision, leadership, strategic direction and administrative oversight for the fundraising effort of the Foundation, the staff and its ongoing support of other research organizations.

An experienced non-profit executive with more than twenty years of progressive experience managing and leading non-profit organizations, Ms. Cronin has a strong background in developing and cultivating relationships with individuals and organizations in support of further fundraising programs and growth initiatives.

Ms. Cronin was previously the President of the National Multiple Sclerosis Society (NMSS) for its New York City – Southern New York chapter, where she was responsible for providing leadership in all areas of chapter operations including fund development, client programs, community relations, financial management, staff development, and board partnership.

Prior to the position with NMSS, she was the President and CEO of Accelerated Cure Project for MS. In collaboration with the Board and staff, she created a comprehensive fundraising campaign that increased revenue over 50% in less than twelve months.

She was the Executive Director for seven years at the Cystic Fibrosis Foundation in the Greater Illinois Chapter, providing overall leadership and management to create cost effective and ongoing sources of revenue, community presence, and mission enhancement for the organization while doubling the revenue during her tenure.

Ms. Cronin spent the last decade in leadership positions for non-profit organizations including Prevent Blindness America, Foundation Fighting Blindness, American Cancer Society and Maryknoll Fathers and Brothers.

A native of Peru, Indiana, Ms. Cronin attended Ball State University. She completed the CFRM at the Indiana University Center on Philanthropy and was awarded a scholarship and participated in the Strategic Perspectives in Nonprofit Management Program at Harvard Business School.

Contact: ccronin@lumindfoundation.org

Michael M. Harpold, Ph.D., Chief Scientific Officer

Michael M. Harpold, Ph.D.Dr. Michael Harpold is Chief Scientific Officer of the LuMind Research Down Syndrome Foundation, and has served as Chair of the Foundation's Scientific Advisory Board since its inauguration in 2006. He has been involved with LuMind since 2005, and has served as member of the Board of Directors (2006-2010) and Chief Executive Officer (2007-2010).

Dr. Harpold has more than 35 years' experience in biomedical research within both academia and the biotechnology industry. Prior to joining LuMind, Dr. Harpold established EnkephaSys, Inc. as a consultant on research, business, and intellectual property issues for pharmaceutical and biotechnology companies. In addition, Dr. Harpold was a founding member and an executive of The Salk Institute Biotechnology/Industrial Associates, Inc. (subsequently SIBIA Neurosciences, Inc.), a biotechnology and pharmaceutical company in La Jolla, CA. There he served for 17 years as the company’s Vice President, Research through its IPO and prior to its acquisition by Merck.

A distinguished molecular and cellular biologist, Dr. Harpold received his Ph.D. in molecular and developmental biology from Tulane University. He conducted postdoctoral research in molecular cell biology as a Helen Hay Whitney Fellow at The Rockefeller University in New York. Subsequently, Dr. Harpold was a faculty member in the Department of Biochemistry, USC Keck School of Medicine and Member of the Norris/USC Comprehensive Cancer Center, following which he held a senior research appointment with La Jolla Biological Laboratories of The Salk Institute. Dr. Harpold’s research has involved diverse problems in molecular biology, biotechnology, and biomedical science, including significant contributions to research in molecular signaling in the nervous system as well as drug discovery primarily focused on disorders of the nervous system. He is the author of numerous scientific research publications and his work has led to 47 issued U.S. patents as well as an extensive set of foreign patents.

Contact: mharpold@lumindfoundation.org

 

 

 

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177
LuMind@LuMindFoundation.org

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